Understanding Hypermobility-Related Conditions

Hypermobility Spectrum Disorder (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS) are conditions that can cause chronic pain, fatigue, joint instability, and coordination issues. Many individuals with these disorders struggle with musculoskeletal injuries and may not realise their symptoms are part of a broader condition.

What Are HSD and hEDS?

These conditions exist on a spectrum, ranging from mild joint laxity to more severe cases affecting multiple body systems. They were previously classified under Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome (Type III) but were redefined in 2017 to reflect their multisystem impact.

Common Symptoms:

  • Frequent joint dislocations or sprains

  • Chronic pain and fatigue

  • Poor coordination and balance

  • Digestive issues and heartburn

  • Autonomic dysfunction (dizziness, rapid heartbeat)

  • Skin fragility and slow wound healing

The Importance of Proper Management

Because these conditions affect connective tissues throughout the body, a holistic treatment approach is essential. Physical therapy plays a key role but must be adapted to prevent further injury.

Treatment Strategies:

  • Strengthening & Stability Exercises: Focus on controlled movements to improve joint support.

  • Pain Management: Education on pacing, gentle stretching, and cognitive behavioral techniques.

  • Postural Awareness: Avoiding prolonged positions that put stress on joints.

  • Multidisciplinary Support: Collaboration with nutritionists, psychologists, and other healthcare providers can improve outcomes.

Final Thoughts

HSD and hEDS are often misunderstood and misdiagnosed. Awareness and tailored treatment can help individuals manage their symptoms effectively and improve their quality of life. If you suspect hypermobility-related issues, seeking guidance from knowledgeable healthcare professionals is key.

Reference

Russek LN, Stott P, Simmonds J. Recognizing and Effectively Managing Hypermobility-Related Conditions. Physical Therapy. 2019;99(9):1189–1200. DOI: 10.1093/ptj/pzz078

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Managing Children with Hypermobility