Managing Pain in Ehlers-Danlos Syndromes (Hypermobile)
Living with Ehlers-Danlos Syndromes (EDS), particularly the hypermobile type (hEDS), often means navigating daily discomfort and persistent pain. At Epoch Health, we understand that EDS-related pain is complex and deeply personal — and managing it effectively requires more than just medication. Our aim is to empower patients through holistic, multidisciplinary care tailored to each individual’s experience.
Understanding Pain in EDS
Pain in EDS can be difficult to pinpoint and treat. While joint dislocations and instability are common sources of discomfort, many individuals experience widespread pain that doesn't show up clearly on scans or tests. This is often due to central sensitisation — a heightened sensitivity of the nervous system that amplifies pain signals. This kind of chronic pain often overlaps with conditions like fibromyalgia and requires a thoughtful, layered approach to treatment.
A Multidisciplinary Management Plan
Successful pain management in EDS often includes a variety of supportive therapies:
1. Physiotherapy and Movement Therapy
Gentle, targeted exercises are essential for improving joint stability and muscle control. Working with practitioners familiar with connective tissue disorders helps prevent overuse or injury while supporting strength and posture.
2. Cognitive Behavioural Therapy (CBT)
Chronic pain impacts more than the body — it affects mood, sleep, and mental health. CBT can help patients develop effective coping strategies, reduce pain-related anxiety, and regain a sense of control over their health.
3. Pain Relief and Supportive Tools
Pain relief may include a combination of medications, topical treatments (such as lidocaine), and non-invasive options like TENS (Transcutaneous Electrical Nerve Stimulation). Many patients also find comfort using supportive items like orthopaedic pillows, braces, compression garments, or ergonomic chairs.
4. Hormonal and Fatigue Management
Pain can fluctuate with hormonal changes, especially in women. Hormonal support may help regulate these patterns. Fatigue, which often goes hand-in-hand with EDS, can be addressed through energy conservation strategies, pacing, and tailored exercise programs that improve endurance without overwhelming the body.
5. Muscle Coordination and Control
Involuntary muscle movements, tremors, or spasms may also contribute to discomfort. Targeted therapy or medication may help improve muscle coordination and daily function.
Why a Personalised Approach Matters
EDS affects each person differently. That’s why a cookie-cutter solution doesn’t work. At Epoch Health, we take the time to listen and work collaboratively to create a plan that suits your body, your needs, and your goals. Whether it's improving quality of life, reducing pain flare-ups, or simply getting through the day more comfortably, we're here to support you every step of the way.
You don’t have to face chronic pain alone.
If you or someone you care for is living with Ehlers-Danlos Syndrome, our experienced team at Epoch Health is here to help guide and support you on your health journey.
Reach out to our team today to learn more about how we can help manage EDS-related pain with a compassionate, evidence-based approach.